Saturday, October 19, 2013

Gastric emptying study

Thursday I had my gastric emptying study. From the looks of it, nothing is moving (still). You can see a pretty big hiatal hernia, though. I was diagnosed with a small one during my last endoscopy, but my GI didn't want to do anything about it at the time. I'm not sure if it's grown since my endoscopy or not. Maybe it will be worth fixing during surgery in MN, if that ever happens. Dr. Dunn is preparing for a conference that she's hosting this weekend, so hasn't had time to get back to me yet. Hopefully next week. Now that I've decided what I want to do, I want it done now! (I'm so patient...)

Otherwise, things are still about the same. I've had a lot of pain this week and have only made it out of the house for appointments. I wake up several times a night, so I'm tired all the time. I'm trying to keep a positive attitude so I dont start spiraling downwards again, but it's tough sometimes. The waiting game is one of the hardest parts - not knowing the answer and not knowing WHEN my drs are going to give me their recommendations (other than to take more meds). So, keep up the prayers - I need them!

Wednesday, October 16, 2013

Back in bed

Well, I'm back in bed again. :-(  The pain I've had on my left side has continued to get worse and worse, and I haven't been able to get out of bed or do much of anything except lay with my heating pad. It totally sucks. Last night I woke myself up gasping and crying in pain. I've decided I just want to pull out the big guns and go for the surgery. I'll have it done in MN - a GI will put in a gastric pacemaker and Dr. Dunn will remove scar tissue (and probably fix a couple hernias). I know the scar tissue can, and probably will, come back, but I have to try something different.

I've contacted Dr. Dunn to see when she can get me in, but I haven't heard back yet. I'm going for another gastric emptying study tomorrow, which should clinch the need for a pacemaker. I'm also going to see the pain dr here in Tucson next week. This is absolutely a last resort, as those close to me know. I'm hoping that he can maybe do something like an epidural or spinal block or something to get me through until I get a surgery date. Dr. Dunn and I talked about this surgery when I saw her in August - I'm just praying that she agrees with this plan and can get me in quickly. Keep your fingers crossed for me!